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A Qualitative Systematic Review exploring the literature on Teenage and Young Adult and Adolescent and Young Adult cancer patients’ experiences of survivorship and Late-Effects clinics

Background Adolescents and Young Adults (AYA) and Teenage and Young Adults (TYA) represent a patient population group with complex care needs. Post cancer treatment the patient is confronted by unique physical, psychological and social challenges. Survivorship care aims to address these needs. Project design A qualitative systematic review was conducted exploring TYA/AYA cancer survivors’ experiences of survivorship and late effects clinics. Four electronic databases were searched CINAHL, Medline, Scopus, Web of Science. The CASP tool was used to appraise the studies methodological rigour. Findings Four themes were identified; Lack of knowledge and preparation for late effects; Barriers in accessing and engaging with survivorship care services; Unmet holistic care needs in survivorship; Poor communication, coordination and transition of care. Conclusion AYA and TYA cancer survivors identified limited information regarding survivorship services and late effects risks. Survivorship Care Plans (SCPs) were valuable for information on late effects risks and follow-up schedules. However, it was highlighted that there was limited SCP availability together with fragmented services. The continuity of holistic care that focused on psychosocial well-being, peer support and use of digital tools and programs were vital in the ongoing care of the AYA and TYA population.

A Qualitative Systematic Review exploring the literature on Teenage and Young Adult and Adolescent and Young Adult cancer patients’ experiences of survivorship and Late-Effects clinics

Background Adolescents and Young Adults (AYA) and Teenage and Young Adults (TYA) represent a patient population group with complex care needs. Post cancer treatment the patient is confronted by unique physical, psychological and social challenges. Survivorship are
aims to address these needs. Project design A qualitative systematic review was conducted exploring TYA/AYA cancer survivors’ experiences of survivorship and late effects clinics. Four electronic databases were searched CINAHL Medline, Scopus, Web of Science. The
CASP tool was used to appraise the studies methodological rigour. Findings Four themes were identified: Lack of knowledge understanding and being prepared for late effects; Barriers to accessing and engaging with survivorship care services; Holistic care needs in survivorship; Communication, coordination and transition of care. Survivors reported a lack of understanding of late effects and uncertainty regarding longterm health risks. Emotional factors including fear of recurrence and avoidance, alongside practical barriers including financial and competing responsibilities influenced engagement with follow-up services. Survivors emphasised the importance of age-appropriate, multidisciplinary, holistic support addressing psychosocial, physical and practical needs. Fragmented care pathways, poorly managed transitions and a lack of coordinated care further contributed to disengagement. Conclusion AYA and TYA cancer survivors describe limited information regarding survivorship services and potential late effects risks. SCPs were identified as a
way of providing information on late effects risks and follow-up schedules, however these were inconsistent or absent. Survivors described limited availability and inconsistent or fragmented services. AYAs valued early information in relation to survivorship
and late effects, continuity of care, holistic survivorship focusing on psychosocial wellbeing, peer support and the use of digital tools or programmes.

Designing a digital scenario generator to enhance midwifery education Evidence from a systematic review of low-fidelity simulation

Simulation-based learning is embedded in midwifery curricula worldwide, supporting skill rehearsal in safe environments. High-fidelity simulation is effective but resource-intensive; low- fidelity approaches offer scalable, accessible alternatives. During the student-to-practitioner transition, confidence, and preparedness are critical to safe, autonomous practice. Evidence on low-fidelity simulation in midwifery specifically was fragmented.

Exploring the Lived Experiences of Lung Cancer Patients Attending a Nurse-Led Follow-Up Clinic: A Qualitative Study

Background: Lung cancer causes approximately 48,000 new diagnoses and 35,000 deaths each year in the UK, making it the leading cause of cancer mortality (UK NSC, 2022; Cancer Research UK, 2024). International guidelines consistently recommend routine surveillance for at least five years following curative-intent treatment (ASCO, 2021:, NCCN 2025, ESMO: 2023; NICE 2024). Nurse-led follow-up clinics play a key role in delivering this care, offering holistic, patient-centred support, symptom management, and continuity while alleviating pressure on consultant-led services (De Leeuw & Larsson, 2013; NHS Long Term Plan, 2019). Despite policy endorsement and growing service provision, limited research explores how lung cancer patients experience nurse-led follow-up, particularly within local contexts. Research Design: Participants were adults who had undergone curative intent, lung cancer treatment and were within the five year follow-up period at a nurse-led clinic. Purposive sampling was used to capture a range of experiences across treatment backgrounds and follow up stages. Data Collection and Analysis: Guided by an interpretivist paradigm and adopting an inductive qualitative design, semi-structured interviews were conducted to generate rich, in-depth accounts of participants’ experiences. A phenomenological approach reinforced the study, enabling exploration of how participants perceived and made meaning of their follow-up care. Data were analysed using Braun and Clarke’s (2006) six-phase thematic analysis, supporting the identification of patterns of meaning grounded in participants’ lived experiences. Findings: Five themes were identified: navigating the treatment journey, emotional response, communication and information, feeling supported, and continuity of care. Participants described nurse led care as providing clear and reassuring communication, offering valued continuity with familiar clinicians, and ensuring accessible support through responsive contact routes. Holistic care that addressed emotional, practical, and psychological needs was central to participants’ sense of safety,
confidence, and wellbeing throughout survivorship. Overall, the findings suggest that nurse led clinics offer a unique relational and integrative model of care that extends beyond clinical surveillance alone Conclusion: The study demonstrates that nurse led lung cancer follow up delivers highly valued, person-centred care that meets both clinical and holistic needs. It addresses the research question by illustrating how communication, continuity, accessibility, and holistic support shape patient experience. The findings support further investment in advanced nursing roles and highlight opportunities for future research to refine and strengthen survivorship pathways.

Exploring the Lived Experiences of Lung Cancer Patients Attending a Nurse-Led Follow-Up Clinic: A Qualitative Study

Background: Lung cancer causes approximately 48,000 new diagnoses and 35,000 deaths each year in the UK, making it the leading cause of cancer mortality (UK NSC, 2022; Cancer Research UK, 2024). International guidelines consistently recommend routine surveillance for at least five years following curative-intent treatment (ASCO, 2021:, NCCN 2025, ESMO: 2023; NICE 2024). Nurse-led follow-up clinics play a key role in delivering this care, offering holistic, patient-centred support, symptom management, and continuity while alleviating pressure on consultant-led services (De Leeuw & Larsson, 2013; NHS Long Term Plan, 2019). Despite policy endorsement and growing service provision, limited research explores how lung cancer patients experience nurse-led follow-up, particularly within local contexts. Research Design: Participants were adults who had undergone curative intent, lung cancer treatment and were within the five year follow-up period at a nurse-led clinic. Purposive sampling was used to capture a range of experiences across treatment backgrounds and follow up stages. Data Collection and Analysis: Guided by an interpretivist paradigm and adopting an inductive qualitative design, semi-structured interviews were conducted to generate rich, in-depth accounts of participants’ experiences. A phenomenological approach reinforced the study, enabling exploration of how participants perceived and made meaning of their follow-up care. Data were analysed using Braun and Clarke’s (2006) six-phase thematic analysis, supporting the identification of patterns of meaning grounded in participants’ lived experiences. Findings: Five themes were identified: navigating the treatment journey, emotional response, communication and information, feeling supported, and continuity of care. Participants described nurse led care as providing clear and reassuring communication, offering valued continuity with familiar clinicians, and ensuring accessible support through responsive contact routes. Holistic care that addressed emotional, practical, and psychological needs was central to participants’ sense of safety,
confidence, and wellbeing throughout survivorship. Overall, the findings suggest that nurse led clinics offer a unique relational and integrative model of care that extends beyond clinical surveillance alone Conclusion: The study demonstrates that nurse led lung cancer follow up delivers highly valued, person-centred care that meets both clinical and holistic needs. It addresses the research question by illustrating how communication, continuity, accessibility, and holistic support shape patient experience. The findings support further investment in advanced nursing roles and highlight opportunities for future research to refine and strengthen survivorship pathways.

Anticipatory Prescribing in Community Palliative Care in Jersey: A Retrospective Clinical Audit

Background As patients approach the end of their life, anticipatory prescribing can be put in place to help support symptom control. This way of prescribing aims to be pre-emptive, in place before symptoms develop. These medicines are therefore at risk of not being required by patients, with associated financial implications of this approach. This clinical audit has evaluated anticipatory prescribing within Jersey, in particular reviewing the administration and waste of anticipatory medications and how the local setting algins with local and national policy. Project design 30 patient records were included in this review, from patients who had anticipatory medications in place and died within the community setting over a 9-month period. Quantitative data was collected from the patient’s anticipatory
prescribing documentation, with descriptive statistical analysis used to explore the data. Qualitative narrative documentation was also extracted to review prescribers’ rationale to evaluate if individualised prescribing is present in the local community. Findings The findings showed that the core medication categories were regularly in place within the reviewed records. However, evidence of individualised prescribing was suggested when individual medications were explored, with differences in medication choice present. A combined total of 2,641 medication vials were prescribed to all patients. More than half (54.6%) were administered to patients, whilst 45.4% did result in medication waste, which was 49.6% of the total cost of all prescribed medications. Over half (53.12%) of all administered anticipatory medications were administered within the last seven days of life. The administration of anticipatory medications showed variation between patient records, with qualitative narrative documentation used to support understanding of this. Limited access to all qualitative narrative documentation did impact the ability to examine the presence of patient specific prescribing. Conclusion The evaluation of anticipatory prescribing within the local setting included quantitative data, supported by qualitative narrative documentation to provide context to prescriber’s decision making. It was shown that prescribing practice largely aligns with local and national policy. The recommendations that arose from this project include continued support for individualised prescribing within the local setting, the introduction of a community symptom assessment tool and a re-audit on this topic.